EBV - RA/Fibro Flare-ups Due To Kidney Stones / Infections?
Jul 25, 2014
I have RA, fibromyalgia, and diabetes II. I have been dealing with kidney stones for 10 years. The last 4 years have involved kidney infections and hospitalization. Last year I was near sepsis and placed in the ICU. Since then I have been experiencing RA/Fibro flare-ups that are worsening. I have had mono 3 times (infancy, twenties, and early thirties). I am wondering if I have it again and whether the kidney infections caused it or were a result of the EBV in my system.
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I'm 16 years old and suffering from what I've been told is medullary sponge kidney disease. I have been to countless doctors, including the mayo clinic in Jacksonville, Florida, Children's hospital in St. Louis, and many local hospitals. Every doctor that I've seen has thrown around many ideas of what my disease "could" be, but none of them have ever actually diagnosed me. It started out as a kidney stone two years ago, had gotten better on and off for the past two years. I had always had at least one kidney stone every six months or so. We call my kidney stone's "flare-ups" because when I get them, it is impossible for me to control the pain without being hospitalized. Also, the doctors have said they are not entirely sure that my pain is kidney stones. The pain is a burning, stabbing pain that goes down my right backside and to my lower stomach on the right side. The stones are calcium-oxalate and are usually small. In the past six months, I have been passing a steady amount of "gravel" in my urine, which is basically small stones. Therefore, I am in pain all of the time. I have been put on countless medicines such as potassium citrate and hydrochlorothiazide. Not to mention the pain medicines, I have found that only Percocet and Norco can even touch the pain. And Phenergan helps with the nausea sometimes. I throw up from the pain almost every other day; Some days I am unable to get out of the bed, eat, walk, and keep anything down. On top of all of that, I am unable to urinate on my own. I have to use a straight catheter 4-5 times a day. I have been unable to go to school, and have been put on homebound through my school. All of this has been very frustrating and we basically have no answers. I have recently had a cystoscopy to look at my bladder and ureter. The doctor said it was completely normal, other than that my ureter tube is smaller than normal. I need some way to cope with my pain and get a better quality of life.
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Hello I am 19 years old I have been suffering with bladder and kidney infections since I was 14. I was admitted to hospital to find out what was wrong with me nothing could be found, I think I have tried every antibiotic under sun...nothing seems to help, I suffer with them every few mounts or so on and off.
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When I fall ill with one I'm very ill it puts in bed for days with terrible pain and fever, I'm young and starting university very soon...I don't know anyone who suffers as bad as me and I struggle to get to the doctors a lot with being a full time student, it's so unbearable and frustrating can anyone help?.
Is it me or is this stuff a waste of time?
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I've had obout 20 lithotripsy's in 15 years of having continuous stones. They've never gotten my kidney completely empty of stones ever. I've had lithos, ureterscopy, PCNL. On meds but they can't seem to stop them from growing. I avoid alot of the things that cause stones or limit them. Got to have the 1 cup of coffee in the morning
On the day before litho, your suppose to eat light ( nothing that leaves residue in bowl) but they say you can have white bread or boiled chicken. (Why bother?) I usually only eat jello, gatorade, and just broth. Plus tons of water. The instructions say to drink the magnesium of citrate after dinner. Well to me dinner is after 6/7. But I thought this time I would take earlier since last time didn't start to move the bowels until i was in the hospital. Plus this stuff is awful- taste bad- even refrigeration like they suggest doesn't really help. Twice in past I threw it up.
So I took at 5 pm thinking it would work earlier. Nope. Nothing. Just stomach cramping and it finally started around 5 am after me getting up every hour during night. Still was working again while in hospital.
There has to be something better (tasting) and work faster. Plus less side effects. Or they should change instructions & say take a noon. Next litho (in 2-3 months) I'm taking a 1/2 day off day before and taking at noon. Maybe then can get a little sleep the night before procedure.
Sorry- felt like ranting as frustrated as its been two full days since litho and nothing passing yet. Plus I have a bad back (2 surgeries) which makes it hard to do the exercises where you drink 2 cups water, wait 30 minutes, then elevate kidney @ 45 degrees and stay like that for 30 minutes to try and get the pieces to move.
Thursday morning I spent the night in the ER with a kidney stone in the left kidney -- when they did a CT Scan - they came and told me that they made an "incidental finding" in the right kidney that is a problem -- they have discovered that I have a "Staghorn" kidney stone that has attached itself and almost completely filled the right kidney. He said that I will not pass it and now my GP has made me an appt. with a Nurse Practitioner at the urologist's office for Tuesday morning to discuss my options. What are my options going to be?
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A while ago I had kidney stones, I was sent for a scan after, upon returning to my GP for the results of my test, he told me there were calcium deposits in my kidney that could mean I have another on the way, I've been trying to keep well hydrated and doing all I can to prevent a recurrence, because they're damn right evil, I've got away with it for quite a while now, last night I was woke up with the same pain I had when I had kidney stones, I sat on the toilet and waited for the pain so subside, it seems to have gone again for now, I was just wondering if I'm supposed to avoid eating foods rich in calcium, I'm also lactose intolerant and with all this I'm starting to wonder if I'm going to en up deficient in calcium.
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I have suffered for a few years now with my kidneys, first starting off with when I drank alcohol. A few days later I would get really ill with a kidney infection and given antibiotics. It then became more common to get them without drinking. I would also inbetween this get recurring bladder infections.
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I am 19, a female, and have had various tests (ct scan, dye put in my arm through a drip to see any problems clearer and a few ultrasounds) done to check the structure of my kidney is all okay and that there isn't any obstructions ( all seems to be okay, and they didn't think that it would be worth looking with a cystoscope just yet.) However something worth noting is that I always seem to have invisible blood in my urine that is discovered through dipstick tests. And recently my brother has been having the same kidney problems (kidney infection, especially after drinking alcohol).
I am also now on medication called 'Hiprex' it has antiseptic qualities to try and prevent getting UTI's/kidney infections however doesn't seem to be working as I still get them.
Really getting fed up now, as when I get ill with it I get super achy, all of my glands swell up, a dry mouth so constantly thirsty and weeing loads, especially at night, and dull aches in my back.
Once when passing urine I passed out from a pain in my right lower side. But like i said, no kidney stones or any problems structurally.
Has anyone else been going through this too? Any ideas what could be wrong?
In Jan '09 I was diagnosed with cervical cancer. I opted to have a hysterectomy due to I was done having kids. I had it done in feb '09. Doctor said that everything look fine and sent me home. I called the doctor's office daily complaining of pain. They told me I was being lazy and needed to get up and walk around more. They said I was having gas pains. Finally the doctor told me to get gas ex that would help. I went back to work about 6 weeks later. While I was at work I started leaking urine. The next day I went back to the doctor (OB) and all he could say is I don't know what is wrong. they but a catheter on me and I was still leaking around that. They ran test after test. Finally when that day was over they sent me home with a catheter and said get some rest come back tomorrow and talk to the urology department we have no clue. I had 3 kids husband out of town working and I am in severe pain. My mother in law took me to the doctor the next day and he said oh your ureter was damaged during surgery we just need to do a minor surgery to put a stent in there and you will be as good as gold. They did the surgery that day. When I woke up they told me that I had 15 mins to get my head on right cause I had to go to the hospital to have a nerostophy tube put in my ureter was actually cut in half. I had no clue what was going on. My mother in law took me over there where I was admitted into the hospital for my 2nd surgery that day. When the doctors there but the tube in they hit my main nerve in my back so every time I would breathe I would get sharp shooting pains up my back. I was sent home with cather and tube for 6 weeks. then in 6 weeks I have a Ureter replacement surgery. The doctor there did wonderful. But to this day I get kidney infections VERY easily and I am ALWAYS in pain in my right side on my back right by my kidney. I was wondering does anyone else have this problem?
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I have never really posted on any board before, so I don't know what to do or what to say. But. I am currently experiencing my 6th UTI and the pain is beginning to radiate to my back already; I believe I have a kidney infection. I just turned 18 years old during the holiday and I never really had a problem with UTIs until 8 months ago when I had my first kidney infection. It was the worst pain I had ever experienced. I had the UTI for a week prior and I was just using monistat since that had worked for me the one other time I had one, and when the pain reached my back I didn't tell my mom until three days after and I was taken to the hospital right then. Anyways, they gave me strong antibiotics and sent me on my way home after hours of IV tries and ultrasounds. The antibiotics worked wonderfully and I finished the bottle like instructed. After a few weeks I had another UTI, so I went to see my doctor and I was given more antibiotics. I didn't think anything of it and I just took my medicine as instructed.
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My third and fourth UTI snuck up on me about three and a half weeks after my second and that was when I was kind of worried. I know something is not right, but I don't have an ob/gyn to consult with as I'm not sexually active (but I will be making an appointment with one and getting a referral for urologist). So I went to my doctor again and I was diagnosed with a kidney infection and sent off with more antibiotics and that single pill that clears up the uti (i don't remember the name). I thought that it had finally worked and I was going to be a-okay until Dec. 23rd when I got my fifth UTI. I went to the hospital, was given a shot (a steroid, maybe? All I know is that it burned) and it cleared up until the day after my birthday on the 28th. I haven't been able to get out to my doctor yet for antibiotics and I'm not a fan of hospitals so now I'm beginning to have flank pain all the way up to beneath my right shoulder blade.
This was rather lengthy but Is there anything that could be causing these recurrent UTIs and kidney infections that I should bring up to my doctor? Because whenever I go there, I pee in a cup and get sent home with antibiotics and "this will nip it in the bud!" but it's back within a month. I'm probably not wording myself right (it's 2AM) but I just want to know if anyone else has had this and what worked for them/their diagnosis?
I'm 23 and have had trouble with Kidney infections all my life.
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When i was little i had trouble with wetting the bed until i was 8years old.
All my life i've had infections, some urine but mostly kidney. When i was 20 I developed acute pyelonephritis which overnight turned into septicaemia and i was rushed into theatre with suspected internal bleeding.
I've seen specialists in Dorset, Somerset and Gloucestershire and have had loads of scans and xrays which all confirm there is nothing wrong with my kidneys.
The only symptoms i get are pain (always always my left kidney only) and cloudy urine. I seem to get these about once a fortnight - i'm so sick of antibiotics (which don't even work that well anymore) that i've stopped going to doctors and just try to cope with it on my own by drinking loads of water and taking painkillers.
Its been suggested that i take a permanent antibiotic which i take everyday for the rest of my life - but i'm only 23 and i hate taking drugs for anything.
I worry that when i'm older i will get kidney failure. I just CANNOT believe that a normal healthy person can get this many infections and nothing be wrong? Or that there is nothing that can be done about it. The specialist in Gloucestershire told me "It's very common and unfortunately technology hasn't advanced enough to deal with the disorder, so there's nothing we can do".
I feel sick, tired and emotional everytime this happens and its so hard to cope with work, university, keeping a house and being a single mum to a 2 year old when i feel this ill. I manage but it makes me cry a lot.
Can wearing panties cause the uti's?
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For the past few years now i have suffered with constant water infections, its always pain in my right side, sometimes i'm sick with it and my back feels like it could break. It can also go into my groin area and down my leg also. I've had CT scans and another type of test which all came back as normal which was last year. I don't understand how it can be nothing as the pain is horrendous and all they do is take a urine sample and give me antibiotics. Does anyone else suffer with this? I wasn't sure if it was when i drank alcohol which is very rare but sometimes i get a water infection and sometimes i don't. The hospital put me on antibiotics for 6 months changing them every 2 months and i still managed to get a water infection on them. I am now having blood tests again and will presume i may have to go for all scans again but just wondered if anyone has had the same problem and had any advice on what it could be or what i could do?
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I know this is probably a place for guys but I cannot find anywhere else to post this ...here it is Last Monday me and my boyfriend went to the ER and they diagnosed him with having kidney stones... he got a cat scan and all that and they said the stone was almost in his bladder... they put him on loratab and flomax i think.... Well Tuesday or Wednesday we did "our" thing and everything was fine well here these past 2 or 3 days if he attempts to get his self off or if I try he cannot cum at all we have tried everything too make him cum and it will not work...
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I have a kidney stone and I seen on a site where it said sex helped so I tried but when I got off nothing came out everything feels normal but nothing came out ...
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Is it possible to have kidney stone pain while the stones are still in the kidney? I have about seven stones in my right kidney and five in my left... I've had lower back pain for almost a month straight and nothing makes the pain go away. I'm trying to get my urologist to call me back, but that is next to impossible if I'm not in the emergency room doubled over in pain. Any suggestions/comments are welcome here
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Had anyone had kidney stones? This is my 3rd child I'm 12+1 weeks. I'm healthy.but in the last 2 weeks I have had 4 kidney stones(on top of being really sick with"morning sickness"). Not kidding it IS worse than having a baby. MY ob said they don't effect the baby at all and pregnant women are more prone to getting them.
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I have had kidney stones for about 20 years and have had a number of treatments. My right kidney now works at 21% due to scarring and infections. My left is fine, working at 98% with one stone. I do not suffer many symptoms but do get an infection 1-2 times a year (I am experiencing my normal infection pain at the moment). My consultant has discussed removing my right kidney, obviously I have my concerns - will my other kidney be strong enough as I am susceptible to stones etc.
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I'm a 29 year old female 36 weeks pregnant. Back in January I had a large amount of blood in my urine and some flank pain ( nothing like what most describe with stones) happened again two weeks later so my OB requested a urology work up. I had a full ultrasound which showed mild fluid in my right kidney which is normal in pregnancy. Then sent me off to a urologist for a cystoscopy and two cytologies to look for bladder tumors and Cancer cells. All which were negative. Fast forward to April and again some flank pain with blood in my urine. Urologist wants a CT scan but can't due to pregnancy. So it became a waiting game. May comes along and im having blood every few days with a little more Intense pain lower along my hip and into my pelvis. No back or 'flank' pain per say but now I am urinating large clots and tissue and blood. Went to the hospital they pumped me full of fluids did an ultrasound and saw absolutely nothing and said probably a kidney stone we'll look closer after you have the baby.... Does any of this sound like a kidney stone? They feel it would be a small one since it can't be seen on ultrasound and I am not in excruciating pain. But I'm having a hard time wrapping my head around a 'small' stone causing so much trouble, blood and clots and taking MONTHS to pass... Any thoughts?
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As a frequent maker of kidney stones (20+yrs) I have for the last 4 years have been operated on approximately every 6 months for stone removal the last 3 times I have been fitted with jj stents which cause me absolutely agony ,I am unable to work with these stents inside me and have now lost my job .am I unusual in having this agony ?the specialists all seem to think I should be able to cope. How long do people put up with the agony before going to a&e?
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Is it possible to have 2 different types of kidney stones? I had a cat scan and it showed only a stone in the kidney. Is it possible I could have more and they didn't show up?
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I have had hyperparathyroid surgery. Had 3 of 4 removed. I also have had 3 lithotripsy (sorry about spelling) surgeries. About 2 weeks ago I had kidney scope surgery and blasted 30 stones on each side. Uro said he had never seen so many in one person. I have high oxalates, and slightly elevated sodium. My PTH is 77-106 off and on and my calcium levels are both normal. Uro and Endo are perplexed. I am wondering if it is because I have a malabsorption and a bad digestive system. They just don't know. I am watching my diet and trying to learn how to eat, but I have many food issues so hard to keep a perfect diet. I am scared to death the stones are going to come back. Doing lab and x-ray in 3 months. I want to find a specialist who can tell me why this is happening. I live in Ks but am willing to travel to find a doc who can tell me what is going on. I have also had gallstones. I am just a stone maker. Hate it. I also drink around 3 liters of water a day.
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