Frequent Kidney Infections After Hysterectomy


Dec 26, 2013

In Jan '09 I was diagnosed with cervical cancer.  I opted to have a hysterectomy due to I was done having kids.  I had it done in feb '09.  Doctor said that everything look fine and sent me home.  I called the doctor's office daily complaining of pain. They told me I was being lazy and needed to get up and walk around more.  They said I was having gas pains.  Finally the doctor told me to get gas ex that would help.  I went back to work about 6 weeks later.  While I was at work I started leaking urine.  The next day I went back to the doctor (OB) and all he could say is I don't know what is wrong.  they but a catheter on me and I was still leaking around that.  They ran test after test.  Finally when that day was over they sent me home with a catheter and said get some rest come back tomorrow and talk to the urology department we have no clue.  I had 3 kids husband out of town working and I am in severe pain.  My mother in law took me to the doctor the next day and he said oh your ureter was damaged during surgery we just need to do a minor surgery to put a stent in there and you will be as good as gold.  They did the surgery that day.  When I woke up they told me that I had 15 mins to get my head on right cause I had to go to the hospital to have a nerostophy tube put in my ureter was actually cut in half.  I had no clue what was going on.  My mother in law took me over there where I was admitted into the hospital for my 2nd surgery that day.  When the doctors there but the tube in they hit my main nerve in my back so every time I would breathe I would get sharp shooting pains up my back.  I was sent home with cather and tube for 6 weeks.  then in 6 weeks I have a Ureter replacement surgery.  The doctor there did wonderful.  But to this day I get kidney infections VERY easily and I am ALWAYS in pain in my right side on my back right by my kidney.  I was wondering does anyone else have this problem?

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I am 19, a female, and have had various tests (ct scan, dye put in my arm through a drip to see any problems clearer and a few ultrasounds) done to check the structure of my kidney is all okay and that there isn't any obstructions ( all seems to be okay, and they didn't think that it would be worth looking with a cystoscope just yet.) However something worth noting is that I always seem to have invisible blood in my urine that is discovered through dipstick tests. And recently my brother has been having the same kidney problems (kidney infection, especially after drinking alcohol). 

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Really getting fed up now, as when I get ill with it I get super achy, all of my glands swell up, a dry mouth so constantly thirsty and weeing loads, especially at night, and dull aches in my back.

Once when passing urine I passed out from a pain in my right lower side. But like i said, no kidney stones or any problems structurally.

Has anyone else been going through this too? Any ideas what could be wrong?

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I have never really posted on any board before, so I don't know what to do or what to say. But. I am currently experiencing my 6th UTI and the pain is beginning to radiate to my back already; I believe I have a kidney infection. I just turned 18 years old during the holiday and I never really had a problem with UTIs until 8 months ago when I had my first kidney infection. It was the worst pain I had ever experienced. I had the UTI for a week prior and I was just using monistat since that had worked for me the one other time I had one, and when the pain reached my back I didn't tell my mom until three days after and I was taken to the hospital right then. Anyways, they gave me strong antibiotics and sent me on my way home after hours of IV tries and ultrasounds. The antibiotics worked wonderfully and I finished the bottle like instructed. After a few weeks I had another UTI, so I went to see my doctor and I was given more antibiotics. I didn't think anything of it and I just took my medicine as instructed.

My third and fourth UTI snuck up on me about three and a half weeks after my second and that was when I was kind of worried. I know something is not right, but I don't have an ob/gyn to consult with as I'm not sexually active (but I will be making an appointment with one and getting a referral for urologist). So I went to my doctor again and I was diagnosed with a kidney infection and sent off with more antibiotics and that single pill that clears up the uti (i don't remember the name). I thought that it had finally worked and I was going to be a-okay until Dec. 23rd when I got my fifth UTI. I went to the hospital, was given a shot (a steroid, maybe? All I know is that it burned) and it cleared up until the day after my birthday on the 28th. I haven't been able to get out to my doctor yet for antibiotics and I'm not a fan of hospitals so now I'm beginning to have flank pain all the way up to beneath my right shoulder blade.

This was rather lengthy but Is there anything that could be causing these recurrent UTIs and kidney infections that I should bring up to my doctor? Because whenever I go there, I pee in a cup and get sent home with antibiotics and "this will nip it in the bud!" but it's back within a month. I'm probably not wording myself right (it's 2AM) but I just want to know if anyone else has had this and what worked for them/their diagnosis?

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I'm 23 and have had trouble with Kidney infections all my life.

When i was little i had trouble with wetting the bed until i was 8years old.

All my life i've had infections, some urine but mostly kidney. When i was 20 I developed acute pyelonephritis which overnight turned into septicaemia and i was rushed into theatre with suspected internal bleeding.

I've seen specialists in Dorset, Somerset and Gloucestershire and have had loads of scans and xrays which all confirm there is nothing wrong with my kidneys.

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Its been suggested that i take a permanent antibiotic which i take everyday for the rest of my life - but i'm only 23 and i hate taking drugs for anything.

I worry that when i'm older i will get kidney failure. I just CANNOT believe that a normal healthy person can get this many infections and nothing be wrong? Or that there is nothing that can be done about it. The specialist in Gloucestershire told me "It's very common and unfortunately technology hasn't advanced enough to deal with the disorder, so there's nothing we can do".

I feel sick, tired and emotional everytime this happens and its so hard to cope with work, university, keeping a house and being a single mum to a 2 year old when i feel this ill. I manage but it makes me cry a lot.

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