Henoch-Schonlein Purpura :: Ankle Swollen
Dec 1, 2009
Five days ago we rushed our four year old son to A&E where we were told he had HSP. the hospital were wonderful made our son comfortable on the ward and we got settled for the night at his bedside. we now have a nurse coming once a week to check on him and i have to check his wee in a morning ( which has been clear so far).
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I was under the impression he was getting better so i let him go to school and since he came home his ankles have swollen up like balloons though he says there not painful.
i don't know now if i should allow him to return to school or maybe if he could go half day. he loves school and i know he wouldn't get any rest at home as he has a two year old sister. I am really unsure of how to treat this disease as you never seem to know what the next hour is going to bring let alone the next day.
we are praying that this does not spread to his kidneys and stomach as it hasn't done yet.
I had two bouts of HSP when I was a child. The first lasted a couple of weeks when I was about five. The next bout lasted for 4 years - from the age of 6-10 years old.
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I've never felt truly 'well' and have now been diagnosed with Chronic Fatigue Syndrome/ME and hypersomnia (it means I want to sleep at the time) I was wondering if this could be an aftermath of the HSP?
The rash has gone and so has the swollen and tender joints. Urine samples come back as normal now (not +4 protein and blood in it like when I had HSP.) unless I have a UTI.
But I still have the same abdominal pain and tender joints (without the swelling) and muscles. I feel constantly fatigued and can't seem to put weight on. My immune system is weak and I seem to catch every bug going around.
My Daughter who is 9 has just been told she has hsp, although at the moment she seems ok apart from very bad rashes all over her body and just started a cold.
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Is this likely to get worse ? or is there a very mild type of hsp she may have ?
After reading other peoples experience's we are very concerned for the future.
My fourteen year old son was diagnosed with HSP about eight month ago about the same time he started wearing braces for his teeth, recommended by our dentist. Initially he had stomach pain, swollen ankles, etc. In and out hospital emergency rooms five or six times. Eight month later, rashes are still here. Doctors could not help, no cure. As parents we suspect it is something to do with his braces. We will visit our orthodontist tomorrow to seek his point of view. Does anyone have same experience with braces?
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My 15 year old daughter about 4 weeks ago came out in an alarming blood rash under her skin on her legs and arms. She had a little blood in her urine but otherwise blood tests were fine. Doc thinks it HSP following a sore throat although this was only mild. On reading the symptoms of HSP most don't apply to her. She's had no sore/swollen joints. The rash seems to clear a little then come back worse again. My question is does anyone know about or experienced a rash like this whilst wearing tooth braces. She's had them for almost a year now. I am allergic to nickel and I've read that nickel is used in Orthodontics often coated so this can wear off over time, which could explain while the condition has only surfaced now. She is close to having them removed so am hoping it may resolve itself as she is very distressed with it.
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I'm a 37 year old man who was diagnosed with HSP in 2007. My symptom was the rash which appeared all over my legs and buttocks. The rash went away but left me with stage 3/4 kidney disease. I feel very scared this will lead to total kidney failure. My recent results doesn't look good with my creatine being 216. This has ruled my life and I'm so upset this could happen to me. The doctors don't know anything. All they have done is put me on 10mg of Ramipril and basically hope for the best. I'm getting married in July to my beautiful fiancé who I love so much but I seem to focus more on this disease and what might happen to me in the near future than her. I'm going to try an alternative way to help my condition. Systematic ideology (excuse the spelling) This focuses on strict diet control, with taking 100 percentage herbal ingredients. The therapy focuses on targeting muscle groups and emotional part of the body. Has anyone else tried this? Would love to hear from anyone in the same boat as me and is there anyone out there that has been in the same situation and continued in stage 3 for a very long time.
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My 6 year old has HSP, she seem's well considering, but the rash and swelling is unreal and looks terrible, I wanna help somehow but other than pain killer's for swelling I have no idea what else I can do
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Has anyone ever used medical cannabis to help treat HSP in children? My 13 year old nephew was diagnosed with a severe case of HSP and was recently released from a week stay at two different Hospitals in Arizona. They have him on two different blood pressure medications (the Hsp caused him to have very high blood pressure) and told him he could take tylenol for the pain along with weekly urine tests and monitoring his blood pressure daily. However, since he's been home from the hospital (3 days now) he can't eat, the pain in his joints, muscles, and stomach has yet to diminish, and his rash has flared up again (ankles, thighs, back). He has zero appetite and a lot of pain and discomfort. I'm curious to seek out treatment that involves using medical marijuana with less THC and more CBD, which i've been told is safe to give children (less of a high but helps relieve pain and nausea) and help get his appetite back. I know medical marijuana is super controversial, especially with children, but it seems steroids and pain medication from doctors has a long list of side effects and other problems.
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If anyone has ever tried medical marijuana to treat HSP, please let me know. No doctor will ever talk about or advise us when it comes to outside remedies.......but i'm thinking outside the box, we need to get his appetite back and help lessen his pain.
Doctor diagnosed gout as my uric acid level is high. I went to see the doctor because my ankles were swollen, he prescribed allopurinol, but so far after 3 weeks my ankles are still swollen and painful, but what's weird is that my right ankle is more swollen than the other. Any explanation?
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I am just writing with the hope of getting some more help/assurance re the Gould brostrom (or as my letter has now pointed out Arthroscopic debridement and lateral ankle reconstruction - unsure if this is the same of different?) procedure which I am due to have in just over 2 weeks on the 22nd June.
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I have been very unsure for a while now as to whether or not to go ahead with it but have decided to take the plunge, however I still have my doubts!
I injured my ankle initially around 5 years ago (ruptured ATFL showed up in MRI scan) and almost had the surgery back then, only to decide not to go ahead with it. Since then I have rolled over and sprained it on multiple occasions, and have felt it become increasingly weak to the point where I have very little confidence in its strength. When playing football I now wear lace up supports, which are strong enough to prevent the rolling, but obviously doesnt deal with the root cause and there is a still a feeling of achiness and limited movement. When not wearing my ankle supports I would say its at least a 50/50 chance I'm going to roll over on my ankle every time.
I can still run and go about my everyday life virtually without any issues (feel twinges but nothing major unless recently sprained) and the views of the consultants varied from the cautious 'maybe only have it if you're playing high level sport' ( which I'm not but just play football weekly for my local team), to saying yes I go for it as its clearly getting weaker and weaker and becoming more of a frustration.
I guess alongside asking for advice as to what to expect post op, I am also seeking assurance that by going ahead I am making the right decision (bearing in mind surgery is considered last resort and rehab process is lengthy).
I'm a 42 year old female. Six weeks ago I was climbing ropes at the gym and dropped down from 4-6 feet onto a piece of excess rope resting on the ground. My ankle rolled and pain and swelling occurred immediately. Being a stubborn woman, I walked it off until the swelling started spilling over my shoe.
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Got an X-ray from the orthopedic who said nothing was broken.
I was on crutches for 2 weeks and still in an air cast boot when I'm on uneven ground or working out. My workouts are modified (rowing, 12" box steps, shoulder work, cleans)and ankle swells 4x the size afterwards.
My current problem/question is this: Saturday I walked without the book (tennis shoes) on a flat surface and was very careful not to twist/turn or injure the ankle. Of course, it swelled 4x the size, as it always does each afternoon.
However, pain woke me up in the middle of the night/early the next morning. I couldn't put any weight on the foot and experienced severe pain over my medial ankle bone. It was extremely tender to the touch and any movement caused sharp pain.
One day later, it's sore but the severe pain is gone.
I had ankle surgery to repair my medial malleolus back on May 8. It was fairly routine--just 2 screws. I was in a cast for a week, then was put into a boot but told to treat it like a cast--NO weight bearing for 7 weeks, keep the boot on 24/7 unless in the bathtub. I followed directions religiously.
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I did notice that when I pressed on certain areas of the foot, I would feel a sharp pain. This occurred in the heel (from the bottom), toes (again, from the bottom, primarily the foot pad below the pinky, second, and 4th toes). When I asked the doctor about this, he said (around week 5) that it was just because I hadn't been using the foot.
The problem persisted, and this week, week 7, I was cleared to start partial weight-bearing--walking in the boot while taking approximately 1/2 the weight off my foot via the crutches. I don't have ankle pain to speak of (or at least, not often and only if I overdo it), but I have terrible shooting pains in my heel and toes as I step. It's OK if I take most of the weight on the crutches, but as soon as I go to more than just a little weight on the boot, the pain starts.
This week I also started PT and the therapist told me this is nerve pain--not uncommon after surgery (don't know why the doctor couldn't have told me this, but OK). I couldn't get much of an idea from her how long this will persist or if there is anything I can do about it.
I'm doing my ankle and leg exercises (those are mostly non-weightbearing at this point) and they are going great. The ankle is clearly healing well. But I don't see how I can progress to full weight bearing (supposed to try that next week!) when much more than a little pressure on the foot results in this nerve pain!
Help! Does anyone have experience with this? Is there anything I can do to speed things along? I need to return to my second job (barefoot hoof trimming for horses--how I broke the ankle!) ASAP and I'm fearful this will slow my progress to a crawl! The doctor is useless.
I've had 4 procedures on my ankle to remove bone spurs from the front of the joint and to microfracture an OCD.
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The first procedure didn't get all of the bone spur removed and I lost 6 months doing PT and then had to have another procedure at the NYC HSS to correct the issues and I also had the stem cells to regenerate the cartilage.
All of the repairs to the ankle went well and the stems regenerated the cartilage based on the 6 month follow up MRI.
I never regained my dorsiflexion. I am stuck at about 2 degrees.
I then had a gastroc release where they told me they got over 10 degrees during the surgery but I was unable to retain it after the PT started.
I then had a debridement to remove scar tissue from the front of the ankle where they we able to get about 16 degrees during the surgery, but the scar tissue once again re-formed and I stuck back at the 2-3 degrees.
I am currently still working hard on PT and have ART and GRASTON done 2x per week.
Has anyone had any luck in finding a surgeon or technique that helps permanently remove the scar tissue to regain ROM?
I'm also a candidate to wear the ankle distraction device where the device is supposed to be able to re-distribute my existing dorsiflexion and plantarflexion to give me enough of each to walk with a normal gait.
I am currently trying to weigh my (limited) options as after 20 months I'm tired of walking with a limp!
I'm 34. I had a left ankle reconstruction for instability with a ligament repair and arthroscopy in July 2015.
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My recovery has been slow due to hip operations around the same time. My ankle has healed well however the range of motion is still below neutral for dorsiflexion though it's improving.
I still have loud cracking on the outside (lateral) aspect of my ankle where the ligaments were repaired. It's terribly painful and my ankle swells straight away each time. It usually occurs with shifting my weight. My ankle surgeon says it's scar tissue breaking down but is it usually accompanied by a loud painful crack in the same area each time. I'm worried it's not ok.
My son has had swollen eyes on and off but usually only one eye but is has happened in the other. I was told it's not pink eye probably allergies.
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This morning he woke up with half of his lip upper and lower really swollen, no bites, not dark, just swollen.
When this happens whichever area is tender not itchy (except his eye but not all the time).
I had unprotected sex for like a week straight 3-4 times ,a day good intense session each time, with a girl i know is clean(STD Wise). Well thats what i thought(showed me legit papers so that's legit). Anyway the day after the final day of having sex, i notice a few red dots(little) appear on my head and shaft, and my scrotum got swollen red and shiny, and now today the pee hole has gotten a little swollen too. It itches no more noticeably then ever only a little bit(not like i'm itching every 5 minutes), doesn't hurt when i pee or ejaculate, its just freaking me out. I am going to get tested tomorrow but was hoping for some faster advice.
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The thing is i shaved all of my junk for the first time(usually just trim) and got what i think is an ingrown hair or pimple (looks like one) on my shaft too, i don't think it's herpes but who knows, i'm just trying to figure what else all this could be.
I've had swollen glands in my neck, a swollen larynx, and hoarseness for the past few days. The outside of my throat is also sore to touch and gets red. The inside of my throat is fine and it doesn't hurt to swallow. No fever, nothing else. When it rains it gets worse. It sometimes goes away after the rain. In the past I had it and it stayed for over two years straight! The ENT could find no reason for it. Is this allergy-related? Has anyone else had this? If so is there anything that can be done? Nothing I do seems to help. I take 20mg reactine that is supposed to last 24 hours, avamys a corticosteroid nasal spray for allergies. I also take symbicort, ventolin, and singulair for asthma.
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I had an OCD 15mm by 13mm removed and microfracture to my ankle last Tuesday (6/25/13). I have been sitting with my leg up on the sofa since.
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I have been placed in crepe bandages while the wounds heal and go back to get the stitches out 2 weeks post op. I was wondering what they will do dressing wise at the 2 week stage. i'm non-weight bearing for 6 weeks but I feel really vulnerable with my foot just in crepe bandages. Will I be provided with an air boot or something or is there any ideas as to how to protect it?
After the 6 weeks NWB what happens? I'm guessing physio and PWB with maybe a boot?
So I had ankle arthroscopy with microfracture for an OCD in my left ankle on 13 Apr 16.
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On discharge from hospital I was told by the physiotherapist that the surgeon was happy for me to walk on the ankle as soon as I could. I thought this was pretty crazy but surgeons know best right? It seemed at the time that the only reason I was given crutches was because I had been given a local anaesthetic nerve block in my left leg in addition to the general anaesthetic and therefore could not put my foot down as it was numb, although I still felt pain in the area of surgery which again I thought was odd. I was not given any form of cast or boot.
Between discharge and my post op review I stayed mainly non weight bearing but after a week or so I started trying to partial weight bear and tried to walk without crutches. My ankle was not happy about this one bit! And so I reverted to non weight bearing, hopping around everywhere on crutches.
At my post op review I saw a podiatrist and voiced my concerns that I could not yet walk and was still feeling pain. I then saw a different surgeon to the one who performed the op, who confirmed that his patients are always given an aircast boot and told to non weight bear for 2 weeks post op!! He then gave me a boot and told me to wear it for a maximum of 2 weeks and then to try to walk again. I am now at that point and I cannot walk and I am still in pain.
Does anyone have any advice/opinions on this?
Those who have started to walk, did you have pain at first and just carried on through it?
I'd be grateful for any comments, good or bad. I can be quite pessimistic at times but I'm afraid I may have hindered my recovery my following the initial instructions.
I'm 8 weeks pregnant n my right ankle clicks everytime I move it n it's sore to stand on it has been doing it for the last 2 week's.
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For the past 6 month I've been suffering from ankle pain which began after a 300 meter sprint with worn shoes. The pain increases after a short walk of 50 – 100 meters. I can barely climb stairs and can't drive my manual gear car because I can't press the clutch. When I relax the pain slowly dissipates. If I walk more than 200 meters the pain can continue all night. On the outside the ankle seems in order without any redness or swelling. No movement limitation. I am practically handicapped and totally frustrated. I am 29 years old (male), with generally good health and can't believe this is happening to me. I have been to 3 different orthopedists, 2 of whom specialize in foot injuries who defined my pain as "mysterious". I have done X-ray, ultrasound, bone scan and MRI. Every examination I took yielded zero pathological findings. At first the doctors thought it’s an inflammation and I got a cortisone injection which didn’t help, and 2 X 10 days of anti-inflammatory medicine, which also didn't help. I have tried multiple ointments, vitamins and herbs. Tried massaging my foot with warm water, Jacuzzi and such. Nothing helps. I'm desperate to find out what is causing the pain. Does anybody have any clue of what this might be, or perhaps suggest a new direction of investigation?
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