Lymphedema :: Multiple Enlarged Nodes In Neck With Various Symptoms


Jan 28, 2016

I am a 40yo female. Within the last year I haven't been feeling well. I noticed swollen lymph nodes on each side of my neck months ago (at least 6 months, maybe longer). Then found one behind my right jaw underneath my ear. That one is very hard, not moveable and seems to be getting bigger. Had an ultrasound that showed 3 that were about 1.5-2cm. 3 without echogenic hilum. The ultrasound report said they can not be sonographically characterized as benign. So they did an FNA on the two largest. They refused to do it on the hard and fixed one. Came out benign. Right before the biopsy one had also become enlarged in the back of my neck. I'm seeing a different doc now and he doesn't understand why the hard one wasn't biopsied so I am going to go for that soon. As far as symptoms, I am exhausted and weak. Had a headache about 2 months back that lasted for 3 weeks straight, now it's a few times a week. Have had side pain behind my left ribs and below for 3 months straight. Now it's on and off. Can't eat much without feeling incredibly full, for at least 6 or more hours afterward. Have stomach pain and diarrhea. And have recently had upper stomach pain where. I can't lay in my stomach.  In October i lost 10 pounds in 2 weeks without trying. I am again starting to drop weight. I have had night sweats on and off for a long time and they are now constant every night. I can't seem to get comfortable even throughout the day. I either feel like it's 100 degrees or I have chills. My CBC showed elevated WBC. It was 11.2 and about a month later increased to 12.8. I've been having chronic eye infections for about a year as well as chronic yeast infections every month. I've been tested for Lyme, mono, HIV, Syphilis (which I new would both come out negative) all negative. Thyroid is normal. Just had a chest x ray that was normal. Waiting to have the second biopsy. Have been having pain in my clavicle region. It's a strange feeling, almost like I'm not sure where it is coming from.(muscle, bone??) I also vomited last night out of nowhere for no apparent reason. My eyesight has become more blurry in the last 2 weeks. It seems crazy that all this is going on with me. It gets very frustrating always feeling like garbage. I am starting to become worried and my doc suggested that if we can't figure it out I should maybe see a hematologist.  The hard node is what is very concerning to me and to my GP. The ENT I went to sent me for the 1st biopsy but seemed to be quite dismissive. I won't be going back to him. From the first appointment, I felt as though he wasn't really listening. My GP is determined to get to the bottom of it, which I am grateful for. He also has said that he thinks all these symptoms are related to one thing. He said there is no way he would say that it is anxiety related because he feels my neck nodes, has seen my eye infections, has seen that my wbc are abnormal, etc. I may push for an excisional biopsy. Has anyone been through this constellation of symptoms? I would be grateful to anyone who would reply with opinion, experiences, or suggestions. I'm at such a loss.

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Im suffering night sweats and breathing difficulty.

I am suffering severe headaches and my head is swollen all over the shape of it changes weekly with one side swelling or the top swelling etc.

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