Scoliosis :: Rods Down My Spine Experience
May 11, 2014
I had a scoliosis curvature of the spine & had 2 rods placed on my spine to correct it, I had this op 11 years ago & I was wondering if anyone else has had this are you still in pain in the years to follow the op. I've had to have the top cut off them as they came away & were sticking out the top of my back, I have lower back pain & pains down my legs & the rods restrict me from doing everyday things without comfort, I was thinking of having them removed as I struggle to find work that's suitable for me to do without being in some discomfort ...
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Anyone else have babies back lined up to yours?
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Hi all, I was born with Kyphosis, never had surgery or treatment, apart from physio. Live in constant pain. Am on high doses of painkillers. 3 Years ago I was diagnosed with Syringomyelia. I was wondering if there was anybody else that has either Scoliosis/Kyphosis AND Syringomyelia, and would like some tips on how to manage.
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I've had scoliosis since i was a baby, i've had 4 operations to try straighten the curve but none of them worked, one of my harrington rods snapped so had to have that removed and got the low blow that there's nothing else can be done for me has my spinal cord is becoming damaged and don't want to risk damaging it more..... The thing i'm writing about today is my ribs, my body seems all squished and not right like a woman with a 'normal' back, and i am having difficulty breathing lately, do any of you suffer with this? If so what do you do to ease the pain and help u breathe easier?
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I have felt uneven for years. My mom has been diagnosed with scoliosis, and my doctors have checked me at every yearly appointment since I was 12. I feel uneven (like if you were to draw a line down the middle it wouldn't be equal), one shoulder (right) is higher than the other, I have neck/shoulder pain, and I feel like my right side of my ribs press are farther away from the midline, like my left side is pushing them over. I feel The only thing is that I am overweight. So I am wondering if it possible for the doctors to have missed it. I am 19 and I am afraid I am going to continue on without answers or being taken seriously. My parents and friends don't believe me. Is it possible I can feel scoliosis from the inside (the uneven feeling I have)?
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I am 35 years old. I had crooked teeth since my childhood but I didn't pay much heed. As time has passed now I desire good properly aligned tooth because I am facing teeth cleaning, brushing complications and bite problems. Can senior adults have braces for their misaligned teeth? Will I get results for the same?
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i'm having this issue since junior high that i have uneven shoulders that cause massive confidence breakdown with me, all shirts look weird on me and im definitely feels shy to open my shirt in a pool. starting now i intend to bulk more muscle to achieve a better posture and fix these issue for having even shoulders and muscles for the long run. do you guys have an advice or any members here that have this same issue so i can have someone to relate to? I'm freakishly scared by the prospect of disease that i might have by surfing the net, Poland's Syndrome and Winged Scapula are some of my assumption. But i am already verified by my chiropractor that i have mild scoliosis about 18 degrees.
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I have idiopathic scoliosis – specifically a ‘C’ curve in my lower spine. Work have bought me a great chair for my desk but I often have to run around the University and work in student rooms and sadly the chairs are terrible basic plastic chairs with no back support.
I have been given a catalogue for back supports I can carry around and strap to or put on chairs but there’s a wide range and wondered if anyone could offer advice out which might be best for the kind of curve I have? I know were all different but otherwise I'm picking randomly!
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From the age of 8-14 i was seen at hospital for Scoliosis for years i would have x rays and check ups, since then nothing? confused! because i was young i only know that i have a lower curve of my spine (sorry don't know technical words).
More recently i complained of lower back pain which my doctor agreed and gave me co codamol as nothing i was taking worked. I am also currently waiting for a physio appointment as my dr said that it may help? not sure but i will try it, however that has been 3 weeks and i still have heard nothing!
Since complaining of lower back pain though i am now having more problems, the spasms are becoming more frequent and shooting up my back and making me gasp when they are bad, these are slowly getting worse. Again i spoke with my doctor and he didn't seem concerned, i however am.
I am working and it is a desk job but i can walk around and split the length of sitting down. Also a hot water bottle does help when i am at home at work is slightly more difficult. I currently have to sleep with a pillow under my back so i am more comfortable. I am also sleeping separately from my hubby as his mattress is way too soft for me to sleep on.
This is driving me mad and i just need the pain to stop. Can anyone offer advice please?
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I am 18 months out from my 4 th spine surgery, ALIF at L4&5-s1. The surgery has been a huge success, no back pain and only occasional mild aching in my legs with ibuprofen for pain control as needed.
My problem is the continuing cramping in my foot, calf, back of the thigh and buttock on the affected side. One or more of those areas cramp multiple times a day. I lay in bed at night and can feel the Calf muscle twitching, have to keep my foot flexed to prevent cramping. As soon as I doze off, my foot relaxes and the calf immediately cramps, meaning I have to get up and walk to stop the cramping. Anyone else have this issue? Any insight? Muscle relaxants have only minimal effect, and I hate the thought of taking them every night. The problem intensifies the more exercise I get, which is discouraging.
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The thing is my neck makes a grinding noise all day and every day , is this normal ? And my lower back is so unbelievably in chronic pain , I can't do anything without it hurting , it gets to the point where my back locks itself and I can't move and every now and then my back goes into a spasm and I end up in hospital because I go into shock and my lips turn blue , but all they do is inject me with some relaxant and send me home , I've asked my dr to get me an X-ray but all they give me is more and more morphine .
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I have Osteoarthritis I think, although the doctor didn't really do any tests to confirm it. Perhaps there's nothing they can do, I don't know. Anyway, it started out when I had a frozen shoulder when I was sixty from fracturing a small bone without realizing it. Because of the strain on the other shoulder that subsequently froze up as well. I had to sleep on my back for nearly a year, but after two lots of cortisone injections into the joints and lots of active dancing in my bedroom whilst in agony, they finally freed themselves and got back to normal. After that episode I found that my lower back was painful when I got out of bed in the mornings, and my right knee would collapse with pain up and down the stairs. My right hip now gives me a lot of pain too, and sometimes all of these joints play up together, leaving me in lots of pain. I do find that paracetamol helps, and I do use voltarol etc. I have tried using flexiseq also, which is a topical treatment that is supposed to lubricate the joint, but it is very expensive at £18 a tube and I'm not really sure whether it works or not. It seems to work sometimes, but not others.
Also, I find that I can wake up occasionally with more or less no pain at all for no reason that I can make out. I wish I knew what it was! Perhaps something I ate, or just didn't do the previous day?? who knows??
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Does anyone have sort of fierce electrical pains travelling through spine lasts some short time and returns months later. I am 54 and have had these since my mid forties.
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The doctor said the lung tissue is possible (mild) pneumonia. I'm less concerned about that, and I'm being treated with antibiotics. However, I have no idea what "degenerative change is present in the thoracic spine" means. He said nothing about that, but he's an allergy/asthma specialist, so it's not really his field...
Here's what the whole thing says:
"Minimal linear infiltrate is present in the left base. The lungs are otherwise clear. The cardiomediastinal silhouette is normal size and configuration. No pneumothorax or pleural effusion is identified. The pulmonary vascularity is normal. Minimal degenerative change is present in the thoracic spine."
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I was wondering if anyone as similar problems to me. I have had alot of cramping pain on my left side towards the spine I have seen a gp about it and says it's musculoskeletal. A few days ago I woke up with the opposite side in agony and I phone the docs but they just said it is muscle spasm. I find it quite strange that the pain from my left seems to of gone and now it's top right of my back. Also how long does a spasm take to go thanks tracy
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I am diagnosed with DISH about 10 years back. My cervical and lumbar spine is fused due growth of calcifications and having lot of pain. my neck movements are restricted and with lot of pain. my posture is also disturbed and could not walk straight. My neck is bent forward and could not lift it straight to its original position. I underwent laminectomy surgery for lumbar spine L3 to L5 and S1 and its is fused by fixing pedicle screws. At present i am not taking any medicine for DISH. of course i am diabetic and hypertensive but under control. Recently a stunt is implanted as there was a block in LCX vessel.
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I know that I have severe Arthritis in my spine. That was clarified back in 2013 from an MRI. However, I have not been able to get further testing. As time has went on, I have gotten some other symptoms that quite frankly scare me. Approximately six months ago, I noticed electrical vibrations coming off my spine...mainly between my shoulder blades. The feeling is somewhat like electrical impulses shooting out from my spine. It's not that it hurts so awful bad, but is a bizarre sensation that is very uncomfortable. Now, after six months they are coming quite frequently and are so prevalent, that it is maddening to say the least. It is now very much in my neck area. I'm having bad headaches. The whole right side of my body has a numb feeling 24/7...especially my right foot. Another symptom is (embarrassed to say), I can no longer control my bladder. I've lost complete control and have to where something in order to not be humiliated in public. I have horrible bowel issues also. If the bladder thing could not be bad enough! Last week I had several bowel issues that I won't even go into. Seriously?? I told my husband that I'm losing complete control of my body, or at least it appears it's going haywire! I just won my social security disability case after a couple of years of not working...which will allow me to get proper testing. I had to quit work because I was going into such horrible spasms at night, that I was screaming through the night and not getting any sleep. I'm still uncertain as to why it was the nighttime that all my horrible symptoms came on. When I stopped working, after a few months, many of those spasms resided. But if I do anything that puts too much pressure on my back, it returns. What kind of pressure? Let's just say that picking up a gallon of milk will do it...not good! Right now, it's the electrical vibrations that are freaking me out, along with losing control of extremities. This has taken on a whole new level of something I just don't want to deal with. I was just wondering who else out there might be experiencing these kind of symptoms and give me some clues as to what it might be?
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I would like to hear from someone who has had one solid rod from top of spine and pelvis where it is attached to pelvic bone...I would like to know how it affects them and what their quality of life is like...I'm not sure if I should have this second surgery or just stay on my crutches for rest of my life...
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What are the dark or black spots that are shown on my lumbar spine x Ray? I have arthritis & degenerative disc. I saw some spots that are of concern to me
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I have a dilemma, my uterus is retroflexed and enlarged due to 3 walnut size fibroids and 6 smaller ones. Since my uterus is retroflexed it is pushing on my spine and rectum. So I get lower back and leg pain. I also get done pressure on rectum sometimes as well. Anyway I gave been going through this for about 2 years hoping everything will shrink due to menopause. Have any of you had partial hysterectomies where you just removed uterus? Anyway just want some advice. Have been debating this for awhile.
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I have back ache on the right side and when i lift my right arm up it hurts in my shoulder area. The bottom of my back on the right aches too. If i touch a certain spot on the right side of my spine it feels like it's bruised but it isn't. Also if i sit a certain way when i get up my right leg feels stiff and sore. Basically the right side of my body doesn't feel right from my neck to my hip but i can't pinpoint where it's originating from apart from the bruised feeling on the side of my spine.
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