Hi all, I was born with Kyphosis, never had surgery or treatment, apart from physio. Live in constant pain. Am on high doses of painkillers. 3 Years ago I was diagnosed with Syringomyelia. I was wondering if there was anybody else that has either Scoliosis/Kyphosis AND Syringomyelia, and would like some tips on how to manage.
View 1 RepliesI've had scoliosis since i was a baby, i've had 4 operations to try straighten the curve but none of them worked, one of my harrington rods snapped so had to have that removed and got the low blow that there's nothing else can be done for me has my spinal cord is becoming damaged and don't want to risk damaging it more..... The thing i'm writing about today is my ribs, my body seems all squished and not right like a woman with a 'normal' back, and i am having difficulty breathing lately, do any of you suffer with this? If so what do you do to ease the pain and help u breathe easier?
View 2 RepliesI have felt uneven for years. My mom has been diagnosed with scoliosis, and my doctors have checked me at every yearly appointment since I was 12. I feel uneven (like if you were to draw a line down the middle it wouldn't be equal), one shoulder (right) is higher than the other, I have neck/shoulder pain, and I feel like my right side of my ribs press are farther away from the midline, like my left side is pushing them over. I feel The only thing is that I am overweight. So I am wondering if it possible for the doctors to have missed it. I am 19 and I am afraid I am going to continue on without answers or being taken seriously. My parents and friends don't believe me. Is it possible I can feel scoliosis from the inside (the uneven feeling I have)?
View 2 RepliesI have idiopathic scoliosis – specifically a ‘C’ curve in my lower spine. Work have bought me a great chair for my desk but I often have to run around the University and work in student rooms and sadly the chairs are terrible basic plastic chairs with no back support.
I have been given a catalogue for back supports I can carry around and strap to or put on chairs but there’s a wide range and wondered if anyone could offer advice out which might be best for the kind of curve I have? I know were all different but otherwise I'm picking randomly!
From the age of 8-14 i was seen at hospital for Scoliosis for years i would have x rays and check ups, since then nothing? confused! because i was young i only know that i have a lower curve of my spine (sorry don't know technical words).
More recently i complained of lower back pain which my doctor agreed and gave me co codamol as nothing i was taking worked. I am also currently waiting for a physio appointment as my dr said that it may help? not sure but i will try it, however that has been 3 weeks and i still have heard nothing!
Since complaining of lower back pain though i am now having more problems, the spasms are becoming more frequent and shooting up my back and making me gasp when they are bad, these are slowly getting worse. Again i spoke with my doctor and he didn't seem concerned, i however am.
I am working and it is a desk job but i can walk around and split the length of sitting down. Also a hot water bottle does help when i am at home at work is slightly more difficult. I currently have to sleep with a pillow under my back so i am more comfortable. I am also sleeping separately from my hubby as his mattress is way too soft for me to sleep on.
This is driving me mad and i just need the pain to stop. Can anyone offer advice please?
I am 41 years old and was diagnosed with Syringomyelia and Intramedullary ependymoma tumors about 2 years ago. I have suffered extreme nerve pain since the biopsy of my main tumor at C7, to the point that I couldn't stand having a shower or my child touching me:yikes:because of the pain! Also increased neurological pain in the whole of my body.
I say thank God for Gabapentin... I take 1800 mg a day which enables me to function better than I would if I didn't take the drug. I get tired so I rest (I can not put this solely down to Gabapentin because my illness also has this effect). The only side effect I have noticed is 'claustrophobia' particularly in the MRI machine I never had it before I started taking Gabapentin ....
I always say 'If I could only choose one drug' Gabapentin would be it every time even before my pain killers.
I've recently been diagnosed with Chiari Malformation type 1 and after reading up on the condition I found that lots of people with the condition either already have or develop syringomyelia. Does anyone know how likely it is that this will develop? Also, does anyone know if the symptoms will continue to worsen over time or will they improve now I'm on medication?
View 3 RepliesSo how are we expected to exercise when we're so tired? I'm 22w,2d and always exhausted. I get less than an hours worth of energy a day. If I try to push past that I feel very ill. Even light stretching or reading a book is to much. I've only had maybe two weeks this whole pregnancy that I felt normal energy wise. Anyone else going through this? If so, how do you get anything done? How do you exercise? And no, naps don't help replenish me.
View 7 RepliesI am maintaining my diet plan, do exercise everyday to make my body and mind strong, also loosing weight. Eating healthy and exercise is the best way of reducing weight. Vegetables, fruits, whole grains, also healthy fats, proteins are essential for our body and mind such as salmon, olive oil, nuts, eggs etc.I use to take Regenon diet pills to stay on diet, they are appetite suppressants that help me to stay on diet plan by controlling hunger. I have lost 12lbs in 2 months and successfully reducing weight..
View 1 RepliesI was diagnosed with Fibromyalgia around 3 years ago and i think i had it for around 8-10 years prior to this.
To be honest i know very little about the condition, my doctors aren't that helpful so I wondered if anyone could give me any tips on things that help improve/manage the condition or things to avoid?
I'm having a hard time at the minute because I'm having one of my flare ups that happen about 4 times a month.
I have been diagnosed with IBS-d and diverticular disease. I'm confident with the diagnosis as I've had all the tests. But IBS-d is managed by FODMAP diet, yet this cuts out so many sources of fibre that the flare ups are most likely the diverticulitis...massive bloating, cramping and diarrhoea.
Any thoughts or successful tips on how I might be able to better manage both?
I used to be an incredibly fit person... played football about 5 times a week, went swimming a lot and run cross country. However, one day after football I felt really weak and couldn't breathe properly and generally felt as though I was dying.
The feeling was gone by the next day though I was coughing up really thick, but loose, clear white phlegm.
From this day onwards I more often than not (though sometimes not) got the same feeling after exercising. The doctors said they would only diagnose me when I was in the state I was talking about but reluctance to get into that state meant they could not diagnose the condition. They gave me asthma pumps and such but I didn't feel as though this is what the problem was.
Anyway, to cut a long story short I basically gave up exercise and it has been 5 years since I've done anything intensive to bring on the condition.
I have not experienced feeling this way in 5 years so I'd imagine it is exercise induced.
I stumbled across some information this morning which matches my condition 100%... it is called Pulmonary Edema though there doesn't seem to be too much information about it online.
I had a scoliosis curvature of the spine & had 2 rods placed on my spine to correct it, I had this op 11 years ago & I was wondering if anyone else has had this are you still in pain in the years to follow the op. I've had to have the top cut off them as they came away & were sticking out the top of my back, I have lower back pain & pains down my legs & the rods restrict me from doing everyday things without comfort, I was thinking of having them removed as I struggle to find work that's suitable for me to do without being in some discomfort ...
View 2 RepliesMy best friend is going through this ordeal of BC, you all are very brave and I admire you very much.
Would any of you have any suggestions about how you manage mouth sores?
I am 35 years old. I had crooked teeth since my childhood but I didn't pay much heed. As time has passed now I desire good properly aligned tooth because I am facing teeth cleaning, brushing complications and bite problems. Can senior adults have braces for their misaligned teeth? Will I get results for the same?
View 4 Repliesi'm having this issue since junior high that i have uneven shoulders that cause massive confidence breakdown with me, all shirts look weird on me and im definitely feels shy to open my shirt in a pool. starting now i intend to bulk more muscle to achieve a better posture and fix these issue for having even shoulders and muscles for the long run. do you guys have an advice or any members here that have this same issue so i can have someone to relate to? I'm freakishly scared by the prospect of disease that i might have by surfing the net, Poland's Syndrome and Winged Scapula are some of my assumption. But i am already verified by my chiropractor that i have mild scoliosis about 18 degrees.
View 7 Replies