Severe Pain In Joints And Muscles With Fever But No Arthritis ?


Jun 8, 2015

My symptoms are severe pain in joints and sometimes muscles that always come with high fever, sore throat and weird cough (small but forced cough) a salmon colored rash and weakness in my joints. The pain is so bad that I scream. I am unable to care for myself. I am so stiff for hours. The pain has progressed throughout the year. I am at a loss. I live in Idaho and my rheumatologist is sending me to Salt Lake City Utah because they have a university hospital with more specialist. I swear to her that I have Stills Disease but she sais I have the symptoms but not necessarily all of the blood results to match.

My cbc always shows an infection, I am always slightly anemic but ferritin is good, not low nor high.
Here is my recent lab work. This is how desperate I am

C-REACTIVE PROTEIN 60
UNITS = ML/MIN/1.73m2
If patient is African-American, multiply result by 1.21.
ALBUMIN 3.5 - 5.0 GM/DL 3.5
AST(SGOT) 15 - 46 U/L 37 45
TOTAL BILIRUBIN 0.2 - 1.3 MG/DL 0.3
CALCIUM 8.4 - 10.6 MG/DL 8.8
PROTEIN TOTAL 6.3 - 8.2 GM/DL 6.1
ALK PHOS 38 - 126 U/L 37 78
ALT(SGPT) 9 - 52 U/L 37 50
ANION GAP 7 - 15 MMOL/L 8

CK 30 - 135 U/L 37 24

I do not like being on the prednisone because of the side effects but I can not handle the non stop pain when I don't have it. Such a little 5 mg dose saves my life. The pain is so bad that all I can do is pray to pass out. I can not take pain pills because they cause severe depression.

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