Severe Vitamin D Deficiency - Fatigue, Depression - Joints / Arm / Legs Pain


Mar 19, 2015

I have recently been diagnosed with Vit D deficiency...the level in my blood was under 10 (it was actually at 3) when it should have been at least over 50.  I think it has been this low for at least a year. I didn't get any sunshine at all last year (severe hot flushes so avoided sunshine) without realising the consequences.  My diet has not been ideal either.  After several blood tests to test thyroid, and lots of other things, the locum GP came up with a severe Vitamin D deficiency.

Over the last 6 to 8 months my health has noticeably deteriorated with  severe tiredness, no energy, really bad aches and pains, with severe pain in my joints, disturbed sleep, very depressed, etc. Plus I am pre menopausal and have depression, all of which are being treated separately and fairly successfully.

Anyway a locum GP put me on 20000iu of Vit D daily for two weeks which I finished this week...and now my usual GP has put me on a long term daily maintenance dose of 800iu Vit D (and didn't seem sure why I was on a daily dose of the 20000).

Anyway I had a business trip yesterday, 6 hours total travelling and 6 hours in meeting, and half hour walks to the station and back....and the result on my body has been catastrophic.  Really aching all over, severe pains in my arms and legs, both much more than usual, bad back, and just generally feel awful.  Is this to be expected?  Is this normal with a vit D deficiency.  How long will it be before I start to see any benefits.  The doc mentioned it will be at least another 6 months before my blood levels are tested but I work full time, am a carer at home and really want to start feeling better soon.

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Symptoms I been having. ..

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*Pain in both legs and arm, worse when walking/working

Also in my feet.

* Frequent bladder
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*Eye sight slightly worse (need glasses now)

A doctor I saw was just at a regular clinic and he did blood work and it came back fine beside that my Vit D level was at 7 which he had the nurse call me and immediately gave a prescription over the phone for V2 vitamin 10,000unit pills and been working on that. Anybody know if my symptoms sound like a legit cause of the vitamin d deficiency? Could it really cause pain and muscle twitching?

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I have recently been made aware that I am vit d deficient , following feeling extremely rough for a considerable period of time . 

Symptoms have included:

severe pain in my shoulders , elbows ,hips 

loss of muscle strength

poor coordination , very wobbly at times

excessive sweats 

fluctuating body temperature - sudden change from comfortable to freezing or the other extreme excessive Heat !!

extreme tiredness

lethargy..... To name a few 

I have found this forum really informative ,and reassuring hearing that with vit d supplements a lot of writers have noticed a big difference in their symptoms.

my question is once diagnosed as vit d deficiency is this something that is prone to drop in the future ?or following a course of supplements does your own immune system usually maintain its levels ? 

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Had ct, Mri, evoked potentials, numerous blood tests, all clear , now it appears according to neurologist that this is all down to vit d deficiency? It's 12 have got 40000 iu to take once a week and been told to go to gp as he no longer needs to see me ?

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- breathlessness

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- muscle weakness

- muscle stiffness

- occasional numbness

- internal tremors

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My cbc always shows an infection, I am always slightly anemic but ferritin is good, not low nor high.
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C-REACTIVE PROTEIN 60
UNITS = ML/MIN/1.73m2
If patient is African-American, multiply result by 1.21.
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ANION GAP 7 - 15 MMOL/L 8

CK 30 - 135 U/L 37 24

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