Dysautonomia :: Feeling Faint, Extreme Weakness And Tired
Nov 5, 2014
Hi, my daughter was just diagnosed less than a week ago with DA. I am heavily in the research phase and would love all the input I can get. I am wondering whether to skip our local cardiologist and go straight to finding a specialist, which I am not have much success with yet. She has been symptomatic for a long time on and off again. Recently, in the last 1.5 mos her symptoms have worsened. She was have "spells" of dizziness, feeling faint, extreme weakness and tired. Over the past week she has gotten worse and has not been able to go to school for 2 weeks now., She gets really faint, very weak and exhausted with ambulation. She has difficulty getting out of the bed.
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So my questions are: Since we have seen a progression does this mean it is getting worse and worse? Anyone know any specialist in SC or NC or close by to those states? She was started on Florinef. How long before we see improvements? Her doctor said 1 or 2 weeks? feeling sad and overwhelmed by this diagnosis. This is my 15 yr who was a competitive gymnast and looking forward to team sports in HS. I am sorry for all who are having to deal with this. Thank you in advance for your input.
I'm only 17 years old. I have felt the way i feel now for months. I am not pregnant before anyone suggests that!
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I suffered from a disease/illness where my glands swelled up til they were huge and you could clearly see them. I had a fever all day, i would go cold and the hot, i had no energy at all and was generally sick! The doctor gave me some antibiotics and it cleared up.
Ever since then i have not been myself. I feel sick at some point during the day, i constantly have a weird feeling in my head, its not pain as such, but like a numbing feeling and irritation. I feel like im going to faint all the time, im weak and very tired, i also get chest pains from time to time & my breathing is rubbish, its hard to breath at times, i generally feel like im dying
I have had countless blood tests and all of them showed nothing!
This totally upset me because im frustrated, i just want it to be over!!
The doctor told me just to have lots of water and exercise.
My family were convinced that i suffer from anxiety and panic attacks!
As i had a panic attack due to the fact i felt so ill i thought i was dying!
It wasn't just happening to me for no reason the attack.
so they took me to the doctor where he told me my symptoms were that of anxiety and panic attacks so he gave me some tablets to take.
But i still feel the same!!
I do not believe that i have anxiety
I am sick if people believing that is what it is!!
I am slightly worried, but last thursday i was told i had asthma and i was given 2 inhalers, but since then my breathing has gotten worse, i suffer from chest pain and a "that's not right" feeling in my chest, and i am soooo fatigued and have no energy and now have lost my appetite :-(
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and also feel sometimes light headed, I have been given a blood test but results aren't out yet and i hate waiting also i am really worried which make me worse and i have some back pain as well.
does anyone's anxiety make them feel faint I feel faint sweaty and my hearing seems funny sometimes . This has been happening on and off all day and has happened before it really scary
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Is it normal to get up quiet quick from laying down and then feeling dizzy like your going to black out for a second? I'm really scared.
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Can anyone tell me if you have fainting feelings with GCA...
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Anyone have this problem that when your stomach starts to cramp you feel like you are going to throw up or pass out? I am wondering if it is my anxiety doing that for fear of the pain or if it is associated with IBS?
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Any suggestions on how to control this feeling and I am already on anxiety meds but for the past week my anxiety has been really high
I've been prescribed Gabapentin for pain 300 mg three times a day if needed - I'm also on 30 mg Mirtazapine for depression and anxiety. I've been on this regime quite a while and tolerated it well, I then decided I would reduce my gabapentin over a few months which i did but the pain came back so I'm slowly returning to the prescribed dosage. However, I'm experiencing dizziness and feeling faint . . . has anyone else experienced this on this combination . . . I'm not entirely sure that it is the combination of drugs causing this as I've tolerated it well in the past.
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I've been seeing my doc lately about some extreme fatigue I've been having. I've had issues with fatigue for a few years now, but about 6 months ago it has gotten to the point where I could hardly make it to school as I have fallen asleep at the wheel for a split second. So my doctor put me on Prozac because of my history of depression. I tried it for the 8 weeks to no avail, and at this point I doubt it is depression. I've been there before, and I have been doing fine. I'm young and very motivated. Since I've been off of Prozac, my fatigue has only gotten worse. I initially thought it was just because I was getting off of the meds, but about a month later, I continue to feel worse. To the point I can hardly function at my job anymore, let alone get anything else done. I then had my Thyroids tested only to be told they look fine
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Then I start to notice that I have been feeling faint a lot lately. Mostly when I make sharper turns, but at times it can come on out of nowhere, like when I'm sitting still! The only thing that really helps this is to lay down until it goes away, and sometimes it will not so I'm forced to go to bed early.
On top of this my periods have been rather irregular. They always have been a little irregular, so sometimes I will miss a period entirely, but mostly I will just have a longer wait until my next period. Lately, they have been coming early. Generally they will be 6 weeks apart, but then I had one that was 4 weeks apart.But everything seemed normal so I brushed it off since I'm used to being irregular anyways. But then my last period started just barely 2 weeks after my last one began! It was a lot lighter (and the blood was a bit thinner) and lasted a couple days less than normal which would be 6-7 days. I also haven't had sex in about 3 months or so.
Along with this I started to notice some muscle soreness and the occasional headache. At first the soreness was random and all over my body, then about a week ago, it all seemed to be in my lower back and lower legs/feet. Now, in the past several days, I've been having severe cramping just like menstrual cramping along with the lower back and leg/feet pain. I'm not due for another period anytime soon, in fact, I just ended my "period" not even a week ago. I've never had cramping in between periods, never this bad, and never for this long.
I am in the process of setting up a sleep study, and I scheduled another doc appointment for June 23rd to discuss my more recent symptoms, but I wanted to know if anyone might have an idea as to what this could be, or if I should try and see someone sooner?
17 and 1/2 years ago I had unprotected sex in the Philippines.Last year I got sick with numb hands and feet.Now my whole body.March 2013 I tested negative for HIV with a Labcorp HIV 1/0/2 ICMA,but I feel it was a mistake.This morning I notice white patches on my tongue and lips.The people in my life think I'm OCD.I also noticed my chest has strange sensations with a wheeze.I feel lousy and don't want to get sicker before I can get help
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About a year ago I had what they originally thought was a stroke but when I had mri and cat scan they showed nothing. Since whatever happened I have a numbness feeling in my left arm and leg and they feel very tired (as if I have done a hard workout at the gym) which has never improved. My right arm and leg has started having a burning sensation. None of these symptoms ever go ever when I sleeping is making nights hard. Doctors keep saying they can find nothing wrong. So what do I do........ I am starting to get panic attacks now as i don't trust my own body I have 2 young children and I am getting extremely frustrated. Is it nerve damage? Why are tests showing nothing up? And now doctors saying is it in my head?
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I'm HORRIFIED right now. I can barely type this down. Please read all: I hadn't smoked for about 10 months when I finally had a hold of some weed. I first smoked .2 grams out of a bowl. It felt great. I was so high. I was also a little sick and the next day, I felt "meh". I was pretty high that day too. SO I smoked that night (last Thursday) to smoke .2 grams again, and it felt great! Everyday afterwards I was high. Like a 3/10 high or sometimes a 6/10 high. I'm not doing anything these days so I'm just staying at home doing nothing. I have been eating fine and drinking lots of water and lots of fruit and none of that has been working. For the past 2 days, I've been feeling more tired than usual with the high. According to some people online, anxiety causes this or some kind of underlying physiological problem. Some people said that it was laced. Others say that it is all in my head. I am a little sick now and my ears are popped and I have a runny nose. Maybe this sickness is making everything worse mixed up with the fact that I am a noob at weed tolerance? Another really weird thing is that in my dreams or when I wake up, I start to remember my previous dreams from months to years ago. It's SO WEIRD. I have no one to talk to and it sucks. I have no friends here. I haven't had one for 10 months. Haven't hung out with one person my age for the past 10 months so can you guys "help" me out. What is going on with me?
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Been on Sertraline 100mg for nearly 10 weeks and I had two good weeks before entering week 10, now I feel sick, tired and have difficulty eating and focusing on TV etc is this a blip like I had before, Dr doesn't want to change meds or up dose.
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The problem starts 6 years ago and it was accompanied with severe gastric problem. The problem with my gastric is better after taking H-pylori. But I feel severe pain if I eat beans specifically lentil and drink any fraction of alcohol. I also made check up for ulcer through endoscopy and the result indicates that I don’t have any ulcer in my gastric.
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This time I am feeling more tired and weak throughout the day. I am also having the feeling to go to the toilet frequently but most of the time nothing is going out except farting.
2 Days waking up tired, feeling miserable,slight headache and light cramps above my bladder. little bit of nausea in the mornings.
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I have been having joint pain, general body pain, fatigue, depression and anxiety for years. I was dx with fibro about 3 years ago. It was first suspected almost 20 years ago. My mouth and eyes are painfully dry. My lips constantly crack. I recently had a PAP done and the GYN remarked how dry my vagina was (I'm not sexually active so I never noticed).
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I recently saw a rheumatologist here in the State (I had previously seen one in Korea). She did a bunch of blood work. My Vit D was 28 (reference range was 30-70). RF, ANA were negative. CRP not done, but has been elevated in the past (multiple draws over a two year period, but none in the last year). ESR was 58 and has been elevated for 20 years (I went through a lot of blood work in high school and nothing was ever found, but it was with ID, not Rheum).
Rheum was next to useless. She said the sed rate wasn't relevant and that there was no need to worry about the Vit D (which was lower in the past) even though I was taking 2000 IU a day.
After talking to my GP, he had me increase the D supplement to 4000 IU/day. He also wrote me a new referral to a different rheum. This one specializes in seronegative arthritis.
I try to be an informed consumer. Current rheum just wants to throw more pills at the issue without getting to the root of it. It seems like if I go in with a fibro dx, everything must be fibro. How do I approach this new appointment (in September!!) to finally figure things out? This new doctor will be in the UH system as are all my other docs. I think she'll have access to previous lab results, if not I can pull them up in my EMR.
I could use words of wisdom, advice, a kick in the butt (if necessary), etc.
for the past week I had severe joint pain and weakness, muscle weakness, bone pain in extremities ( had a blood test for lupus and RA[ no family history of either] Starting to get a bit better as long as I rest. recently sexually active with one person, now I just noticed feeling swollen like I was getting a UTI ( hurt when I urinate), but noticed it hurt in my vagina not urethra, checked and there are 4 small red bumps in my right labia minora and 1 in my left labia minora-odorless, feels inflamed and hurts now. Is this related to possible lupus or separate problem? I feel exhausted and run down.
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I can't wait to be able to sleep any position I want especially on my tummy. 10 days till due date.. I know I'll be able to sleep better whe. Babe is here eve with having the nightly feeding.
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i am new to these discussions but I do know how many of you feel. I have mentioned that I was diagnosed with mixed connective disease, lupus, fibromyalgia and who the hell knows what else. I can't work becuause if I sit to long, my legs start falling asleep. If I stand to long, my legs start aching. I feel exhausted all the time like when I wake up in the morning, I could just as easily go back to bed and sleep my entire life away. I wish there was something in a bottle that gave you energy. I miss my old life when I used to work out all the time and had enough energy for 10 people and then one morning I woke up and couldn't bend my leg back, it just wouldn't work so my family doctor sent me to a rheumatoidologist and he is the one that took all my blood from my body, that's what it feels like sometimes, and gave me the great news of having all these diseases but no medication seemed to work. I went to another rheumatoidologist and he put me on Lyrica which helps my upper joints but my legs were in such pain I felt like it was to much to even walk down the hall. Now along with my family doctor, my rheumatologist and my pain doctor, I take Lyrica for joint pain and oxycodone and fentenal patches for pain, especially when my mixed connective disease starts up, it just brings my systemic lupus to life and I get the butterfly rashes mostly on my upper arms which adds to my stress which makes my fibro flare up and gives me pain in my legs and then it just starts over. It seems to be a cycle especially when it's hot. I also start sweating like I was in a sauna all day just on my head and face. People look at me like did you know your sweating like a pig. It's embarrassing but I don't know what to do about that so I put ice on my head at night to keep my head cool so I won't start swearing. I've never had that problem before but only since these diseases came and decided to stop on my little doorstep. I am a true believer that stress can cause all sorts of bad things including diseases. I am just going to try to start yoga but I have to absolutely force myself to do this. I start next week. The worse thing I could have done 12 years ago when I was diagnosed with all this crap was to stop exercising.
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Here's a brief background and symptoms I've been having. I've been a migraine sufferer since my preteens. Mainly migraines with aura but also morning headaches etc. about 7 yrs ago I gained 40 lbs very quickly over a 1-2 yr period and was exhausted all the time. I went to pcp office and saw a dr other than my own. She commented on my weight gain like she was appalled and asked if I was depressed. I did not feel depressed just frustrated mostly. She did a tsh test and said it was normal. I was also having what I was told was possibly ibs (mostly d but also c) and have dealt with this for the past 7 yrs as well. Skip ahead a couple years I noticed a correlation between the ibs and eating gluten products. I visited with my dr and he had me get a celiac panel. The results came up negative. I should also mention I was eating gf before the test so wonder how that may have effected the results. Fall/winter 2011 I was extremely fatigued, sore joints, muscle aches, hard time falling and staying asleep, noticed cold bothering me more ( I live in New England) so in January I found a new dr near where I lived. He basically said that it may be seasonal affective disorder even tho I told him I really didn't feel depressed just exhausted. After basic bloodwork as well as tsh and the wrong vitamin d test he said all was normal, get some rest. All I could think was gee thanks. So I saw another dr shortly after who was great but he tested me for Lyme and lupus which were both neg and also the correct vit d test which showed I was at a 6 and severely deficient. After a few months 50000 iu and then continued 1000 iu daily with some results of less fatigue. A couple months ago I started to feel the extreme leg cramps again, joint pain especially in knees and wrist, extreme fatigue as well as new symptoms of ringing in ears, dry scaly skin that I can literally rub off. I have always lost a lot of hair with showering and brushing but it seems like more lately. I called my pcp and asked for another vit d test thinking it may be related. come to find out it was a 17 so not as low as before but still low. I've done a little research and I feel like it could be hypothyroidism but I am unsure exactly what I should request for tests from my dr. I don't want to waste money on something if it doesn't seem needed. Any advice would be greatly welcome. I am just tired of being tired and frustrated.
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My last period started on September 12. Hubby and I may have conceived on the 23rd! My period was due today but hasn't come yet. Been feeling a little under the weather so decided to take a hpt today. The result was a faint line. Will try testing again in a couple more days. Got the result in less than a minute!
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