Nerve Disorders :: Involuntary Muscle Tensing & Contorting -dystonia?


Aug 30, 2013

I often involuntarily tense up and sometimes contort my muscles into painful positions—for example, arching my back deeply or sharply pointing my foot/toes. This occurs randomly, and many times every day. It happens in 1-3 areas of my body at a time, in varying combinations—including my jaws (clenching), tongue, back, hands, arms, buttocks, legs and feet. I don't realize I'm doing it until it starts to hurt! Once I'm aware, I can force the muscles to relax, but it just happens again after 10-30 secs, or if not that soon, a few minutes later (in the same part(s) of my body, or different one(s). It makes my muscles (and sometimes the joints) very fatigued and painful. I thought maybe it was anxiety, but it happens when I have little-to-no anxiety at all, and I've tried relaxation methods, stretching, anti-anxiety meds, all with no success. Someone I know told me that my symptoms seem very similar to the early symptoms of her dystonia. I don’t really know anything about dystonia, so if someone could tell me if this problem sounds like dystonia or not.

P.S. I’ve been diagnosed with: Asthma; ADHD; Constant Headache; Fibromyalgia; GERD; Irritable Bowel Syndrome; Idiopathic Tachycardia; Migraine—without aura; Depression; several musculoskeletal conditions (right shoulder, right knee, left foot); Keratosis Pilaris; Eczema; Upper Airway Resistance Syndrome; and Hypothyroidism. I also have the following symptoms that doctors haven’t yet diagnosed or attributed to any of my already diagnosed conditions: Ear Problems: pain (right ear, spreads to the neck just below ear, and to the surrounding facial area), stinging and itching sensations deep in the right ear, and bilateral paroxysmal tinnitus; Eye Pain/Visual Problems: left eye pain (accompanied by a gnawing numbness around that eye), bilateral eye pain (separate from aforementioned left eye pain), poor night vision, “trailing” (after lying down), and “ghosting” (upon exertion); Numbness/Tingling—entire left side of my body; Altered Taste—constant odd tastes—metallic, bitter, sour/citrus; Dizziness and Poor Balance/Coordination; Fainting/Falling; and Hair Loss.

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I'm a 48 yr old female and would like to know..why ..on my finger next to my thumb pulsates and involuntary movements and wheels

t that's happening..my nerve twitches next to my thumb..on my left hand..im right handed.

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Toe :: Sustained Involuntary Movements - Dystonia? Seizures?

Just wanted to know if anyone had ever come across this before. Our older son has had constant movement back and forth toward the other toe for over 4 months. Have gone to doctors and no one knows what it is. Also, has had muscle spasms in chest and back and sometimes down to the abdomen on both sides.

Going for MRI next week, but was wondering if anyone had had this before. One doctor thought it was from seizures, but the movement never stops. Is there a type of seizure that never stops? Also, have done some research on dystonia. Does dystonia have movements like this. Also, there is no pain from movement on toe. But, does have pain in chest and back. X-ray came back normal.

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Muscle Disorders :: Generalised Stiffness And Right Calf Muscle Wasting

When in bed at night I struggle to turn over or move as I feel so stiff and sore. Once out of bed and moving I am much better. I initially find it hard to become upright after sitting for any length of time. About 2 years ago my daughter noticed my right calf was much smaller than my left one. I cannot raise my self onto my toes on my right leg due to loss of muscle/strength in the affected leg. 

I have had blood tests, nerve stimulation tests and a muscle biopsy. My CK level from my blood tests was slightly raised, my nerve study tests were abnormal and my biopsy only showed minimal change. 

I now cannot raise my arms above shoulder level to the front and if I walk at a quicker pace my lower back feels like I have no support and I get pain around my lumbar region. 

I go spinning 4/5 times a week and cope with this very well. It's as though once I'm warmed up my stiffness diminishes. I am 51 and have only one period every 3/4 months , I have been to the dr's re the menopause but have been told all my blood tests are normal.

i have been referred to a neurosurgeon and neurologist  with ? A form of muscular dystrophy but now my muscle biopsy result has not shown the expected result. 

i struggle going up and down stairs often. I feel so fed up with my inability to do what I want to do as I have always been an active person. I have put weight on and cannot motivate myself to control my diet.

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Neurological Disorders :: Involuntary Snorting Every 45 Seconds

My 30 year old daughter has been doing this for the last several years. She can resist doing it for a while, but typically snorts every 45 seconds or so when she doesn't feel a need to limit it. It's loud and unpleasant. She says it feels like she can't breathe so she is actually snorting in her throat more than her nose. She feels like her throat is tight and not letting in enough air. I know it's bothersome for her, but it is maddening for those she lives with.

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Movement Disorders :: Tardive Dyskinesia And Involuntary Movements

I'm struggling to cope with having tardive dyskinesia and can't stop lip smacking/tongue movements every day.

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Sleep Disorders :: Involuntary Rapid Jabbering Before Falling Asleep

This is driving me crazy for the last year! Most nights I don't get a lot of sleep so I am often overtired. When I am about to fall asleep I will have lots of sudden episodes of rapid nonsensical utterances. My husband calls them AbbaDabbaDoo episodes, lol. The sounds are always different and often very loud. Sometimes I will even yell out. This all happens before I start to fall asleep or even feel I am drifting off. Often I am awake reading, on the computer or watching TV. Even when absorbed in a fast hockey game I can emit these sounds. There is no denying I am awake but, I am still tired. I was tested for Myoclonic Epilepsy but, it was negative. I do have Sleep Apnea and use C-Pap. I also have Myoclonus mostly with leg jerking but sometimes worse. The sudden blurting out episodes often co-inside with the leg jerks. Has anyone ever had this or even heard of it. I can get no answers from my ENT or Neurologist. I don't know where to go next in trying to get an answer. Is this just merely another version of sleep starts?

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Movement Disorders :: Tremors/involuntary Slow Finger And Hand Movements At Rest

I'm seeing a neurologist next week because of the above symptoms.   I'm a 68 year old woman and my GP said it's the way my body is aging!  I'm not so much worried (about for example Parkinson's) as intrigued.  I know lots of people suffer hand and finger tremors but I am a bit unnerved by my hands and fingers moving very, very slowly on their own.  As I stop typing for a moment my right little finger has raised itself from the keyboard as if it were being pulled but very very slowly.  My whole hand will slowly curl and even my arms will move on their own if I am "at rest".   It's probably something with no explanation but I wonder if anybody else who has been diagnosed with a neurological/muscular  condition has experienced this symptom.  I do feel as if I am trembling right through my body and my feet will also move independently if I keep still long enough. I don't seem to have any other Parkinson's symptoms.

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Nerve Disorders :: Tingling In My Right Arm

My arm has been tingling off and on when i use the mouse and lay my arm on the desk for about between June and Sept. By Mid September it happens every time.

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Autoimmune Disorders :: Muscle Weakness

I am a 29 year old female and I was diagnosed with Hashimoto's Thyroiditis at the start of the year. I have been having problems with my right eyelid in that over the course of the day it progressively becomes droopy and the only thing that relieves it is when I close it. When it becomes droopy it makes my eye feel like there's something in it and I end up rubbing it. It's only when I look in the mirror that it's droopy.

In January  my endocrinologist ran an autoimmune profile (but not for every single antibody) and rheumatoid factor and these are the results of it:

Rheumatoid Factor - 9IU/mL (<20 negative)

HEP2 - Positive

Type - Speckled

Anti-DSDNA - 7IU/mL (<30 negative)

(Positive antinuclear antibodies but no significant disease association found)

ENA screen - Negative

Autoimmune profile

Antinuclear Abs - Positive

Anti-Smooth muscle Abs - Negative

Anti-Parietal Abs - Negative

Anti-Mitochondrial Abs - Negative

Anti-LKM Abs - Negative

Anti-Thyroid Peroxidase Abs (Anti-TPO) - 141 kIU/L (<34 negative)

I am posting here because I have a suspicion that I have Myasthenia Gravis. Not only have I got the problem with my eyelid but I tried to follow some physical tests for muscle weakness such as holding my arms out straight in front of me and deep knee bends.The results of these home tests I did:

Holding out arms stretched in front for 60 seconds - pain in both arms when it came up to the 60 seconds and left arm dropped slightly

10 deep knee bends - did all 10 knee bends but the last 3 made my legs feel weak and shaky

5 sit-ups (sitting from lying down) - could only manage 4 sit-ups

I have an appointment with my GP on Friday and since this has now appeared I'd like to mention my concerns to them.

My main concerns are :

Wouldn't my endocrinologist have tested me for Myasthenia Gravis if it's an autoimmune condition? If so what antibodies would she have tested and would any of the ones I had tested have shown I have Myasthenia Gravis?

Who do I need to request to see to get a confirmed diagnosis?

If it is indeed Myasthenia Gravis would it be because my current autoimmune condition made it worse? I have read that this is possible and I became very hypothyroid yesterday as I had very bad Reynaud's flares when out and about.

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Is there any solution specially after stem cells science has been developed?

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